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Nulibry Patient assistance program

Is your Nulibry medication too expensive? Start receiving your medication for only $49 per month.*

Complete a free online enrollment application to find out if you’re eligible to pay only $49 per month for your Nulibry medication with our help.

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  • NiceRx Benefit
    Secure: Your personal and medical information is safe with us
  • NiceRx Benefit
    Convenient: Your medication is delivered straight to your door
  • NiceRx Benefit
    Ongoing refills: Your medication is refilled automatically
  • NiceRx Benefit
    Secure: Your personal and medical information is safe with us
  • NiceRx Benefit
    Convenient: We manage the whole process and we’re here to assist you
  • NiceRx Benefit
    Ongoing refills: We request your medication refills on your behalf

NiceRx works with your healthcare provider to help you access affordable medications directly from U.S. pharmaceutical companies.

How it works

  • Enroll online

    Get started by filling out the online enrollment application to find out if you are eligible for assistance.

  • Pre-qualification

    NiceRx verifies your eligibility for medication assistance and notifies you if you are qualified. The pharmaceutical company provides your medication for free and you only pay our service fee.

  • Submit documents

    We will request documents to be submitted by you and your healthcare provider that are required by the pharmaceutical company to complete your enrollment.

  • Receive medication

    Once approved, the pharmaceutical company typically ships a 90-day supply of medication to your home or healthcare provider’s address.

Medically reviewed by  Jamie Winn, PharmD

Your monthly Nulibry cost savings if eligible

If you are eligible for the Nulibry patient assistance program you can receive your medication for free. Our monthly service fee of $49 per medication covers the cost of our services in applying for the program and requesting your ongoing refills on your behalf. If you obtain your Nulibry through NiceRx, you will only pay $49 a month regardless of the retail price of your medication.

Am I eligible for the Nulibry patient assistance program?

You could receive your Nulibry without paying the full retail price if you meet the eligibility criteria for assistance. The eligibility requirements are set by the pharmaceutical companies that are providing assistance programs. At NiceRx, we review each application individually, although the main factors considered by most programs are:

  • I am a permanent, legal resident of the United States or Puerto Rico
  • I am uninsured or my insurance doesn’t cover my medication
  • I meet certain income eligibility requirements

How do I apply for Nulibry patient assistance?

We do everything that we can to take the hassle and stress out of applying for patient assistance programs. Simply start by filling in our enrollment application. We will ask for details about your healthcare provider, your insurance, and your household income. This information is required by the pharmaceutical companies you are applying to for assistance. We may also be able to help you access patient assistance for other medications that you have been prescribed, so be sure to tell us about any medications you are taking as well as Nulibry.

NiceRx will review the information you have provided, and if we determine that you may be eligible for assistance, we will seek to enroll you in the Nulibry patient assistance program. We will handle the enrollment process for you by working with your healthcare provider and preparing all the required paperwork for your doctor to sign. We will also request your Nulibry medication refills on your behalf for up to 1 year once you are enrolled in the program.

Is NiceRx a Nulibry coupon provider?

At NiceRx, we help eligible individuals access the Nulibry patient assistance program. This means that we are not a Nulibry coupon, a Nulibry discount card, or a Nulibry copay card provider. We do not offer any medication trial offers, or free Nulibry samples.

Can NiceRx help me get Nulibry cheaper if I have insurance?

We may be able to help you if you have insurance, including if your insurance company will not pay for your Nulibry medication, or you have a high copay or coinsurance responsibility. We may even be able to assist if you do not have insurance. Please fill in our enrollment application to find out more.

How much does Nulibry cost without insurance?

Nulibry costs without insurance will vary depending on how much you buy and the retailer you buy it from. As a guide, Nulibry intravenous powder for injection 9.5 mg will typically cost around $1,450 for 1 powder for injection. If you obtain your medication through NiceRx, you will pay a flat monthly rate of $49 per medication regardless of its retail price.

How much does Nulibry cost with insurance?

The copay of Nulibry will vary in line with the specific terms of your healthcare plan. For further details about what you may need to pay, your insurance provider or pharmacist will be able to calculate the copay costs with your current insurance.

What is Nulibry?

Nulibry is an FDA (U.S. Food and Drug Administration) approved medication manufactured by BridgeBio Pharma, Inc., and affiliate Origin Biosciences, Inc. It is a cyclic pyranopterin monophosphate (cPMP) with FDA approval to reduce the risk of mortality in patients with molybdenum cofactor deficiency type A(MoCD type A).

The efficacy of Nulibry for the treatment of patients with MoCD Type A was established based on data from three clinical trials compared to data from a natural history study. In these studies, Nulibry or recombinant cPMP (rcPMP; same active moiety and biologic activity as Nulibry) reduced the risk of death by 82% compared to the untreated, genotype-matched, historical control group in the natural history study

What doses of Nulibry are available?

Nulibry is available in injection form, in the following doses: 9.5 mg of fosdenopterin as a lyophilized powder or cake in a single-dose vial for reconstitution.

Please read the full prescribing information and always speak with your healthcare provider about any changes to your dose so they can monitor and evaluate your condition.

Nulibry active ingredients

Patients with MoCD Type A have mutations in the MOCS1 gene leading to deficient MOCS1A/B dependent synthesis of the intermediate substrate, cPMP. Substrate replacement therapy with Nulibry provides an exogenous source of cPMP, which is converted to molybdopterin. Molybdopterin is then converted to molybdenum cofactor, which is needed for the activation of molybdenum-dependent enzymes, including sulfite oxidase (SOX), an enzyme that reduces levels of neurotoxic sulfites.

The build-up of sulfite and secondary metabolites such as S-sulfocysteine (SSC) in the brain causes rapid, progressive, and irreversible neurological damage.

Nulibry side effects

The most common adverse reactions of Nulibry in clinical trials include:

  • Catheter-related complications
  • Pyrexia
  • Viral infection
  • Pneumonia
  • Otitis media
  • Vomiting
  • Cough/sneezing
  • Viral upper respiratory infection
  • Gastroenteritis
  • Bacteremia
  • Diarrhea

In rare instances, Nulibry can cause more serious side effects. These can include:

  • Photosensitivity – you should avoid exposure to sunlight, and wear sunscreen, protective clothing, and sunglasses when exposed to the sun. If photosensitivity occurs seek medical attention immediately and consider a dermatological evaluation

Your caregiver will assess the benefits of using Nulibry against your risk of side effects. Patients are encouraged to report negative side effects or adverse reactions of Nulibry to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.

Nulibry drug interactions

Other drugs may interact with Nulibry, including prescription drugs and over-the-counter medicines, vitamins, and herbal products. Tell your health care provider about all of your medicines including any supplements you are taking.

Nulibry contraindications

You should not use Nulibry if you:

  • Are allergic to the active ingredient fosdenopterin
  • Are allergic to any of the other ingredients in Nulibry

Talk to your doctor before using Nulibry if you:

  • Are taking any of the medications that could interact with Nulibry

Nulibry generic

Nulibry is the trademark brand name for fosdenopterin manufactured by BridgeBio Pharma, Inc., and affiliate Origin Biosciences, Inc. A generic version of fosdenopterin is not available. Generic drugs are generally cheaper than brand-name drugs, but you can still find Nulibry savings through NiceRx.

*Qualifying persons may obtain medications directly from patient assistance programs without any out-of-pocket cost (or for less than $49 per medication). However, our monthly flat rate of just $49 per medication spares you the hassle of tracking the different programs and filling out all the required paperwork for each program. Subject to medication availability.

Enrollees enjoy a full-service solution, as NiceRx assists them and their physicians with the entire process. We prepare all required documents for the physician to sign, help enrollees manage all prescription refills, monitor eligibility criteria, and maintain enrollment.

**If you do not receive medications because you were determined to be ineligible for the prescription assistance by the applicable pharmaceutical companies and you have a letter of denial, we will refund any fees you paid toward medications for which you did not qualify to receive prescription assistance (“Refund”).

To receive a refund, you must send the letter of denial to us by fax to 888-517-7444, or by e-mail to [email protected] within 30 days of your receipt of such letter. The Refund is your sole and exclusive remedy for any fees you may wish to dispute.

The content on this website is intended for information purposes only. It does not constitute medical advice. The information on this website should not be relied upon and is not a substitute for professional medical advice. You should always speak to your doctor regarding the risks and benefits of any treatment.