Home / Medications / Kanuma

Kanuma Patient assistance program

Is your Kanuma medication too expensive? Start receiving your medication for only $49 per month.*

Complete a free online enrollment application to find out if you’re eligible to pay only $49 per month for your Kanuma medication with our help.

Get Started Now
  • NiceRx Benefit
    Secure: Your personal and medical information is safe with us
  • NiceRx Benefit
    Convenient: Your medication is delivered straight to your door
  • NiceRx Benefit
    Ongoing refills: Your medication is refilled automatically
  • NiceRx Benefit
    Secure: Your personal and medical information is safe with us
  • NiceRx Benefit
    Convenient: We manage the whole process and we’re here to assist you
  • NiceRx Benefit
    Ongoing refills: We request your medication refills on your behalf

NiceRx works with your healthcare provider to help you access affordable medications directly from U.S. pharmaceutical companies.

An introduction to NiceRx

Play video (01:52)
  • An introduction to NiceRx
    (01:52)
  • Next steps after qualifying
    (00:38)
  • Uploading documents and billing
    (00:50)
  • SSN & billing information
    (00:33)
  • Medication delivery time
    (00:41)

How it works

  • Apply Online

    Get started by filling out the online enrollment application to find out if you are eligible.

  • Qualification

    NiceRx verifies your eligibility for medication assistance and notifies you if you are qualified. The pharmaceutical company provides your medication for free and you only pay our service fee.

  • Upload Documents

    You may be required to submit further information and documents required by the pharmaceutical company which can be securely uploaded online.

  • Application Created

    Your application is created and sent to your doctor for signature. At this stage, you will be billed $49 and will not be billed again until you receive your first medication delivery.

  • Receive Medication

    Your application is sent to the pharmaceutical company. You will be billed again once you receive your medication. We handle the entire ordering process including requesting ongoing refills.

Medically reviewed by  Jamie Winn, PharmD

Your monthly Kanuma cost savings if eligible

If you are eligible for the Kanuma patient assistance program, the cost of your medication will be free. We only charge $49 per month for each medication, to cover our service fees. You could receive your Kanuma prescription for just $49 a month, regardless of the retail price of your medication.

Am I eligible for the Kanuma patient assistance program?

We will review your application to determine whether you are eligible for the Kanuma patient assistance program. Each program has its own eligibility criteria which are set by the pharmaceutical companies, however, the factors considered by most programs are:

  • I am a permanent, legal resident of the United States or Puerto Rico
  • I am uninsured or my insurance doesn’t cover my medication
  • I meet certain income eligibility requirements

How do I apply for the Kanuma patient assistance program?

We make it as easy as possible to apply for the Kanuma patient assistance program. The first step is to complete our enrollment application. Tell us about any medications you are taking, including Kanuma. We will also ask for details about your healthcare provider, insurance, and your household income. This information is required by the pharmaceutical manufacturers who ship your medication.

If we determine that you may be eligible for Kanuma assistance, we will handle the application process for you. We will work directly with your healthcare provider to prepare your application documents. Once we have received the signed application and supporting documents, we will submit them to the patient assistance program on your behalf. Our service continues once you are enrolled in the Kanuma patient assistance program, and we will automatically request your Kanuma medication refills for up to 1 year.

Is NiceRx a Kanuma coupons provider?

We are a service provider that helps eligible individuals access the Kanuma patient assistance program. That means that we do not offer printable Kanuma manufacturer coupons, Kanuma discounts, or free Kanuma samples. We are not a Kanuma coupon provider or Kanuma discount card. Our service extends to assisting eligible individuals to access the medications they need through patient assistance programs.

Can NiceRx help me get Kanuma if I have insurance?

We may be able to help you to access Kanuma patient assistance in a variety of circumstances. This includes when your insurance company will not pay for your Kanuma medication or if you have a high copay or coinsurance responsibility. We may also be able to help you if you do not have insurance. Please apply online to find out more.

How much does Kanuma cost without insurance?

Kanuma cost without insurance will vary depending on where you buy it. As a guide, Kanuma intravenous solution (2 mg/mL) usually costs around $10,700 for 10 milliliters. With NiceRx you will pay a flat monthly fee of $49, regardless of the retail price of your medication.

How much does Kanuma cost with insurance?

The copay for Kanuma with insurance depends on the terms of your healthcare plan. To find out how much this is, your healthcare provider or pharmacist will be able to calculate your copay with your current insurance.

What is Kanuma?

Kanuma is an FDA (U.S. Food and Drug Administration) approved medication manufactured by Alexion Pharmaceuticals Inc. Kanuma (sebelipase alfa) is a hydrolytic lysosomal cholesteryl ester and triacylglycerol-specific enzyme indicated for the treatment of patients with a diagnosis of Lysosomal Acid Lipase Deficiency (LAL).

Kanuma works by reducing the buildup of fat that causes medical complications, including growth failure, digestive problems, liver damage, and heart complications. It also improves blood levels of fats, lipids, including reducing elevated low-density lipoprotein cholesterol (LDL) and triglycerides.

What doses of Kanuma are available?

Kanuma is available in injection form, in the following doses: 20 mg/10 mL (2 mg/mL) solution in single-use vials.

For patients with rapidly progressive LAL deficiency presenting within the first 6 months of life, the recommended dose is 1 mg/kg as an intravenous infusion once weekly. For patients who do not achieve an optimal clinical response, increase the dose to 3 mg/kg once weekly.

For pediatric and adult patients with LAL deficiency, the recommended dosage is 1 mg/kg as an intravenous infusion once every other week. Infuse over at least 2 hours, but consider prolonging the infusion time for the 3 mg/kg dose or if a hypersensitivity reaction occurs.

For additional safety information, please see the full prescribing information. Always speak with your healthcare provider about any changes to your dose so they can monitor and evaluate your condition.

Kanuma active ingredients

Kanuma contains the active ingredient sebelipase.

Kanuma side effects

The most common side effects of Kanuma in clinical trials compared to placebo include:

  • Diarrhea, constipation
  • Nausea, vomiting
  • Fever
  • Rhinitis, runny nose
  • Anemia
  • Cough, sore throat, nasopharyngitis, chest discomfort, difficulty breathing
  • Urticaria
  • Headache
  • Oropharyngeal pain
  • Asthenia

In rare instances, Kanuma can cause more serious adverse reactions. These can include:

  • Hypersensitivity reactions including anaphylaxis – consider the risks and benefits of treatment in patients with known hypersensitivity reactions to eggs or egg products

Get emergency medical help if you have signs of an allergic reaction – hives, difficult breathing, swelling of your face, lips, tongue, or throat. Your doctor will assess the benefits of using Kanuma against your risk of side effects. Patients are encouraged to report negative side effects or adverse reactions of Kanuma to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.

Kanuma drug interactions

There is currently no data for Kanuma interactions with other medications. Tell your healthcare provider about all the medicines you take, including prescription drugs and over-the-counter medicines, vitamins, and herbal supplements.

Kanuma contraindications

You should not use Kanuma if you:

  • Are allergic to the active ingredient sebelipase alfa
  • Have had an allergic reaction to any of the other ingredients in Kanuma

Talk to your doctor before using Kanuma if you:

  • Are taking any of the medications that could interact with Kanuma
  • Are pregnant or are planning to become pregnant
  • Are breastfeeding or are planning to breastfeed

Kanuma generic

Kanuma is the trademark brand name for sebelipase alfa manufactured by Alexion Pharmaceuticals Inc. A generic version of sebelipase alfa is not available. Generic drugs are generally cheaper than brand-name drugs, but you can still find Kanuma savings through NiceRx.

Related medications

*Qualifying persons may obtain medications directly from patient assistance programs without any out-of-pocket cost (or for less than $49 per medication). However, our monthly flat rate of just $49 per medication spares you the hassle of tracking the different programs and filling out all the required paperwork for each program. Subject to medication availability.

Enrollees enjoy a full-service solution, as NiceRx assists them and their physicians with the entire process. We prepare all required documents for the physician to sign, help enrollees manage all prescription refills, monitor eligibility criteria, and maintain enrollment.

**If you do not receive medications because you were determined to be ineligible for the prescription assistance by the applicable pharmaceutical companies and you have a letter of denial, we will refund any fees you paid toward medications for which you did not qualify to receive prescription assistance (“Refund”).

To receive a refund, you must send the letter of denial to us by fax to 888-517-7444, or by e-mail to [email protected] within 30 days of your receipt of such letter. The Refund is your sole and exclusive remedy for any fees you may wish to dispute.

The content on this website is intended for information purposes only. It does not constitute medical advice. The information on this website should not be relied upon and is not a substitute for professional medical advice. You should always speak to your doctor regarding the risks and benefits of any treatment.